More Meds=More Research

So G-man had a doctor’s appointment and what I have been trying to avoid for so long came full tilt to slap me in the face just another reminder of reality in our house. Gray’s autism specialist and I have been discussing the possibility of putting Gray on seizure medication for months now, I have been avoiding the issue as his seizure’s didn’t seem to be that bad and he can even go for a month or so without having one but since our last doctor’s appointment he had to be taken into the hospital for back to back seizure’s that I couldn’t get stopped a total of six the longest of which was over four minutes, the longest four minutes of my life I might add, it’s funny how our children can bring so much joy into our lives but can also be the cause of so many of those heart stopping moments. So after Gray was into the hospital I had gone in to see his specialist and she had given us some drugs to be administered in case of emergency the same drugs that they had given him in the hospital to stop his seizures in the emergency room. I was happy with this and thought that this would be the end of the anti-seizure discussion, no such luck I walked in yesterday sat down and the first thing out of the doctor’s mouth was “I just got a report about Gray’s progress with his speech and occupational therapy and I’m very impressed with how things are going,” yeah I was ecstatic with his progress as well but then came the but, “but she said I am not so happy with the seizures and the fact that after he has them he seems to regress in the progress that he has made,” what could I say it was the truth he does regress in any progress that we have made, then she asked the big question so how have his melt downs been, well as you all know he had that big one that lasted for thirty one hours so I let her know about that, but she already knew that because when I go in to see her I go in prepared with a break down of all of the good things and bad things and any changes that have been made in the household or with Gray’s situation so the major melt down was in the negatives coloumn that she had gone through before we entered her office, like I said she already knew about the melt down and she had already made up her mind as to how the appointment was going to go from there.

I think it is time that we start him onto the anti seizure medicine it will help with the seizures as well as to help with the emotional melt downs and given everything that is going on in your household and the stress that he will be going through in the next little while I really think that this is the best course of action to be taken. Okay so I could no longer avoid the subject, time to meet it head on, the seizures were not going away they were not being controlled by the other medication which had initially been thought might help by helping to reduce the anxiety and therefore reducing the stress related seizures, so since they were not going away and the other medication was not helping then we had to figure something else out something that was going to work to reduce the seizures if not stop them completely. She prescribed him a medication that should not interfere with his other medication and now it begins we will gradually increase the dosage so that his body will have time to adjust to it and then we will do the blood work that’s right did I mention that the new drugs bring with them one more thing to add onto the list of worry I now have to take my three and a half year old in for blood work every three months to make sure that the drugs are not having an adverse effect on his kidney’s so once again I go to my computer I sit and I research and become overwhelmed by the fact that I am again responsible for making a decision that will affect my sons life both now and in the future and hope that I am making the right choice that the drugs that I am putting my little man on are going to help him and hopefully that in the long run they are not going to have any bad effects. So tomorrow morning I will start the new drug and watch carefully for any side effects and pray that it works out okay.